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| The Aspen Group | About The Aspen Group | About Home Health & Hospice | General Information | Links |
At any time during a life-limiting illness, it's appropriate to discuss all of a patient's care options, including hospice. By law the decision belongs to the patient. Understandably, most people are uncomfortable with the idea of stopping an all-out effort to "beat" their disease. Our hospice staff members are highly sensitive to these concerns and are always available to discuss them with the patient, family, and physician. Generally speaking, anyone who is within the last six months of expected life span is eligible for hospice benefits. The best outcome are always realized when patients elect hospice care having months, not weeks or days, to live. That being said, hospice can be a benefit to anyone facing life-limiting illness, regardless of how long they may have to live.
The patient and family should feel free to discuss hospice care at any time with their physician, other healthcare professionals, clergy, or friends.
Most physicians know about hospice. If your physician wants more information, he or she can call us at anytime. In addition, it is available from the American Academy of Hospice and Palliative Medicine, medical societies, or the National Hospice and Palliative Care Organization Helpline, 1-800-658-8898. Also, physicians and all others can also obtain information on hospice from the American Cancer Society, the American Association of Retired Persons, and the Social Security Administration.
Certainly. If improvement in the condition occurs and the disease seems to be in remission, the patient can be discharged from hospice and return to aggressive therapy or go on about his or her daily life. If a discharged patient should later need to return to hospice care, Medicare and most private insurance will allow additional coverage for this purpose.
One of the first things we will do is contact the patient's physician to make sure he or she agrees that hospice care is appropriate for this patient at this time. (We have medical staff available to help patients who have no physician.) The patient will also be asked to sign consent and insurance forms. These are similar to the forms patients sign when they enter a hospital. The so-called "hospice election form" says that the patient understands that the care is palliative (that is, aimed at pain relief and symptom control) rather than curative. It also outlines the services available. The form Medicare patients sign also tells how electing the Medicare hospice benefit affects other Medicare coverage for a terminal illness.
We will assess your needs, recommend any necessary equipment, and help make arrangements to obtain it. Often the need for equipment is minimal at first and increases as the disease progresses. In general, hospice will assist in any way it can to make home care as convenient, clean, and safe as possible.
There's no set number. One of the first things our hospice team will do is prepare an individualized care plan that will, among other things, address the amount of caregiving a patient needs. Hospice staff visit regularly and are always accessible to answer questions and provide support.
Must someone be with the patient at all times?
In the early weeks of care, it's usually not necessary for someone to be with the patient all the time. Later, however, since one of the most common fears of patients is the fear of dying alone, hospice generally recommends someone to be there continuously. While family and friends must be relied on to give most of the care, we do provide volunteers to assist with errands and to provide a break and time away for major caregivers.
How difficult is caring for a dying loved one at home?
It's never easy and sometimes can be quite hard. At the end of a long, progressive illness, nights especially can be very long, lonely and scary. So, we have staff available around the clock to consult with the family and to make night visits as appropriate.
What specific assistance does hospice provide home-based patients?
Hospice patients are cared for by a team of doctors, nurses, social workers, counselors, home health aides, clergy, therapists, and volunteers--and each provides assistance based on his or her area of expertise. In addition, we help provide medications, supplies, equipment, hospital services, and additional helpers in the home, as appropriate.
Does hospice do anything to make death come sooner?
We do nothing either to speed up or to slow down the dying process. Just as doctors and midwives lend their support and expertise during the time of child birth, so hospice provides its presence and specialized knowledge during the dying process.
Is the home the only place hospice care can be delivered?
No. Although most hospice services are delivered in a personal residence, some patients live in nursing homes or assisted living centers.
How does hospice "manage pain"?
Our nurses and doctors are up-to-date on the latest medications and devices for pain and symptom relief. In addition, physical and occupational therapists assist patients to be as mobile and self-sufficient as possible. Hospice believes that emotional and spiritual pain are just as real and in need of attention as physical pain, so it addresses these, as well. Counselors, including clergy, are available to assist family members as well as patients.
What is hospice's success rate in battling pain?
Very high. Using some combination of medications, counseling and therapies, most patients can attain a level of comfort that is acceptable to them.
Will medications prevent the patient from being able to talk or know what's happening?
Usually not. It is the goal of hospice to help patients be as comfortable and alert as they desire. By constantly consulting with the patient, we have been very successful in reaching this goal.
Is hospice affiliated with any religious organization?
Hospice care is not an off-shoot of any religion. While some religious organizations have started hospices (sometimes in connection with their hospitals), we serve a broad community and do not require patients to adhere to any particular set of beliefs.
Is hospice care covered by insurance?
Hospice coverage is widely available. It is provided by Medicare, by Medicaid, and by most private health insurance policies. To be sure of coverage, families should, of course, check with their employer or health insurance provider.
Does hospice provide any help to the family after the patient dies?
Hospice provides continuing contact and support for family and friends for at least a year following the death of a loved one. We also sponsor bereavement and support groups for anyone in the community who has experienced the death of a family member, a friend, or a loved one.
If the patient is eligible for Medicare, will there be any additional expenses to be paid?
Medicare covers 100% of the cost of all services and supplies related to the terminal illness for the hospice patient.
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